A Different Kind of School Day: How is My Engine Running?

I realize I have yet to do a blog post outlining what we’re doing in our homeschooling this school year, but we have been plugging along at it 🙂 Yesterday we did something different, though, for part of our school day. I’d had in the back of my mind for a long time – months – that I needed to do a craft with my big kids that I’d seen Karyn Purvis using in one of the TBRI DVDs we’ve watched.

I mentioned in my last post that, since my weekend away in Chicago at the Refresh Conference, we’ve been seeing a good amount of dysregulation here at our house. For those not familiar with the term, I thought that Paris Goodyear-Brown gave a good definition at the conference – she defined dysregulation as “an abnormality or impairment in one’s ability to adjust, organize, or control.”

Academics are important, yes, but I was reminded in a breakout session that Cindy Lee hosted at the conference that 2 of our main goals for our children should be: (1) for them to be able to be who God created them to be; and (2) for them to reach a place of secure attachment (being comfortable in their own skin, being able to give care, being able to receive care, and being able to negotiate their needs). It really needs to be of primary importance for me to help my kids work toward those goals (and of course, work we do in moving toward those goals will also help to provide a firm foundation for academic learning!). And so, yesterday, we devoted several hours to that.

All four of my kiddos and I made “How is my Engine Running?” meters.

  • Blue is for “too slow” – when I’m feeling lethargic, tired, or sad.
  • Green is for “just right” – I feel content and calm; my state of alertness is perfect for the activity I’m doing right now.
  • Yellow is for “speeding up” – when I feel agitated or restless.
  • Red is for “too fast” – I have very big feelings, my lid is totally flipped, and my actions may feel out of control and are probably inappropriate for the situation.

We used a railroad track to demonstrate what it looks like for a train engine to be in each of these states and as a catalyst for discussing what it looks like for us to be in these states.

Then we hung up our meters in the living room in a place in which they would be easily accessible to us throughout our days at home.

(We left a spot for Matt to hang his after he gets a chance to make one, too 🙂 ) 

All of the kids loved running over all afternoon and adjusting their meters. The littles (2 and 4) are still picking up on the idea, but the bigs (age 7) are all over it. They are noticing when their own meters are edging off of “green” and when their siblings’ are – and when mine is beginning to creep toward yellow, as well!

Paying attention to your own emotional state is such a huge part of being able to address it and eventually to self-regulate. I’m particularly interested in helping my kids notice when they are drifting into that “yellow” area – some of my kiddos can seem to go straight from green through the tiniest of tiny yellow slivers, directly to red, and that’s not ideal. Both they and I need to do a better job of noticing when they start to enter into yellow territory, and having these meters has helped us be more cognizant of that.

Karyn Purvis talked a lot about the process of child development and how babies, when they’re born, rely almost entirely on external regulation. They require assistance in meeting all of their basic needs – hunger, temperature control, cleanliness, etc. As children grow, they enter a phase of co-regulation, in which they begin to participate in the process of getting their needs met, but they still require assistance from others, generally parents. And as these children mature even more, they are increasingly able to self-regulate, to meet their own needs and calm themselves. If our kids are having trouble self-regulating, we can help them learn those skills by assisting them with co-regulating.

After we made our “How is my Engine Running” meters, we talked about some strategies for co-regulating and self-regulation. None of these are revolutionary, but they are all strategies that I need to do a better job of practicing when my kids are actually calm so that they are more willing and able to do them when they are dysregulated.

I’ve found that my children are highly resistant to taking a deep breath when they’re really upset. We all know it would help, but they’re so upset they won’t do it. Sometimes, if their lids aren’t completely flipped, if I just start breathing deeply, their bodies will follow, almost unconsciously – but that’s not an entirely frequent occurrence 🙂 But this week something serendipitous happened. Miranda asked if we could buy flowers at Aldi, and they weren’t very expensive, so I said that she could pick out a bouquet of roses. And now? Now when someone is having a hard time, I say, “Would you like to smell my flowers with me?” And the child invariably says yes! Deep breath in; deep breath out. “Smell another flower!” Deep breath in; deep breath out. And…calm.

We also read some of this book.

We talked about what mindfulness is (the book defines it in an accessible-for-kids way as “paying attention to everything right now or as it happens”). And we practiced some of its exercises. We practiced doing the Sharkfin. We practiced mindful breathing. We practiced mindful noticing our feelings. And we practiced doing a body scan.

(Some of us had a bit more of a handle on the recommended posture for the body scan than others!)

We’re working on building our capacities for paying attention to ourselves, our feelings, and our bodies. And we’re working on developing more strategies for helping ourselves get to that “just right” state in which we’d so often like to live.

It was a good day. I’m glad we took the time to make this initial investment of time in growing in these areas, and we’ll continue to nurture these skills as we move forward!

Note: For more information about the ideas behind the “How is my Engine Running?” concepts, feel free to check out this basic info from The Alert Program and/or this information from The Zones of Regulation

Another New Activity for Us – Swim Team!

I wrote this summer about how both of our older girls had opted to leave gymnastics behind for a new adventure of horseback riding. They’re still doing that, but we’ve also added another activity for Miranda – swim team!

She loves being in the water and loves swimming, and we realized this summer that she was actually a strong enough swimmer to be able to do swim team – kids just have to be able to swim one length of the pool in some approximation of freestyle and one length in backstroke, and while it wasn’t pretty, she could do that! She said she wanted to try it, so we signed her up, and she is loving it.

The first day was pretty overwhelming – there were so many people, but since then, it has calmed down significantly!

You can see Miranda in the front, next to the starting block for lane 2, dipping her toe in the water

For her age group, there is a 45-minute practice each day, and swimmers are asked to make it to one practice per week but are welcome to come daily, with most families choosing to have kids attend 2-3 days per week. There are a few days that I’ve made the choice of whether we’re going to go or not, based on what else we have going on and how everyone is doing, but when it’s left up to her, she almost always chooses to go!

swimming in lane 2

She is definitely a sensory seeker, so having this built in activity for many of her days is really a blessing for her. She’s also ready to be having more social interactions with other kids, and swimming provides her with an opportunity for some of that.

She’s one of the younger kids in this entry-level group of swimmers and one of the least experienced and one of the slower kids. That’s something of a new experience for her – being the oldest child in our family and the oldest child in our small group and one of the older kids at our church as a whole and being homeschooled, she’s used to being the top dog. We think it’s good for her to be able to experience working hard and persevering and celebrating doing her best, regardless of where that places her in the rest of the pack, and being able to have fun in the midst of all of that.

Last Friday evening was her first swim meet ever, a team intrasquad. I appreciate her coach’s perspective of taking things slowly and letting young swimmers just have fun and enjoy swimming. Our club is actually hosting a huge meet later this month, and her coach advised me not to sign Miranda up for that at all and to keep things very simple for her at this first intrasquad meet, just signing her up for one event. She’s really enjoying backstroke, and I do think it’s probably her strongest stroke right now, so she chose to swim the 25m backstroke for this first meet.

She was nervous beforehand, and honestly, I was a bit nervous for her. I’ve attended some swim meets with friends over the years, but this was the first time I’d been a parent responsible for a swimmer at a meet, and I was nervous that I’d somehow miss where she was supposed to go for her event or say something silly and discouraging before she had to race. But I think we did alright 🙂 We got her set up with her events written on her arm (she was so thrilled to have a legitimate reason to have Sharpie on her arm!).

And we made it to the pool in time for me to get a good seat to watch her race and for her to do her warm-ups, after which we had some time just to chill.

my nervous swimmer pre-race

(Don’t you just love her Christmas themed swimsuit? We were instructed to buy our swimmers endurance suits, which are more durable than regular swimsuits, and as she and I scrolled through the options on Amazon one evening, this is the one she really wanted. I verified that she planned to wear it for more than just December before purchasing, but while she has another one, too, she chooses this one virtually every day – I think it’s pretty adorable :)) 

She had a snack and played an ipad game while the older kids warmed up, and then we got her ready to race! They had a bullpen staging area for the 8-and-under crowd where coaches and volunteers got them lined up appropriately for their races, so I helped her get into her spot there, and then I went back to my seat to watch her.

I’d talked with her a lot about how Matt and I would be proud of her no matter what – she might win her heat, she might be somewhere in the middle, she might come in last, or she might get disqualified for some reason, and no matter what, we’d be proud of her for doing a new thing – her first race in her first swim meet.

I cheered hard and took a video of her, watching her and the swimmer next to her as he slowly edged in front of her as they swam across the pool. I knew she’d be disappointed if she finished last in her heat, but it also wouldn’t be the worst thing in the world for her to experience – and as I saw the swimmer next to her pass her, I was pretty sure she was going to finish last.

She did finish the race (in what I thought was last place), she got out of the pool, and her coach gave her an enthusiastic high five and told her she’d done a great job, and she was beaming when she made it back to me 🙂

She was bummed when I told her I was pretty sure she’d finished last, but she took it well, and we got her dressed and got ready to head home. But on our way, I texted Matt and asked if it would be okay if I took her out to eat – everyone else had already eaten at home without us, and she’d been asking for a date with me for a while. She and I headed out to Olive Garden and enjoyed some sweet one-and-one time for the rest of the evening and talked about how proud I was of her for doing a new thing and working hard and swimming her best.

I actually realized later that night, after she was already in bed, when I went back to watch the video of her race, that it looked like she really did finish before one of the other swimmers in her heat (one on the far side of the pool, on whom I hadn’t been concentrating at all), putting her in 4th place in her heat instead of last. I told her that the next morning, and she was happy, but really, I was very pleased with how she handled it all even when she thought she had finished last!

Overall, I’m really thankful for her swimming experience thus far. It has upped the ante for us as a family in terms of these extra-curricular activities. Gymnastics – at the level at which Miranda and Madeleine CaiQun had been participating – was very much an activity where we paid our money and showed up once a week and that was it. Participating in a swim team is a whole different ballgame. We pay our money (though it’s actually a pretty low cost, given the number of hours she can be in the pool each week for that amount!), plus we have a fundraising expectation, plus we are required to volunteer at every meet our club hosts (and not just for an hour here or there – my required volunteer shifts for this upcoming meet will total something like 11 hours). And because of the timing of the practices, I can often be found parading into the pool building with 4 kids in tow, after having prepped most of dinner ahead of time, which I know is the only way we’ll be able to eat before 7:00. At least for now, though, the younger kids are all completely on board with going to swim practice, mostly, I think, because I let them play on old iPads of Matt’s while we’re there, an activity that is not generally allowed at home 🙂 Ultimately I think it would be neat if swimming became a whole-family sport – but we’ll have to see what the future holds for us in that regard! For now we’re just enjoying Miranda’s participation in it.

I do, though, really appreciate that swimming is such a good lifelong, healthy activity. Especially with Matt’s health history, it will be important for Miranda to establish good exercise habits from a young age, and my hope is that this will be part of that. It’s a great fit for her with her sensory seeking tendencies, and it’s a really good opportunity for her to get some experience interacting with the coaches and other swimmers, people outside of our family. Plus, she’s enjoying it 🙂 It’s a welcome addition to our repertoire this year.

Post-Surgery and Travel Update

Thank you so much to all of you who prayed us through our travels to Omaha for FangFang’s oral surgery and our return trip back to Missouri!

We left early Thursday morning and made it to the hospital just in time to meet the dentists who would be performing FangFang’s surgery the next day and do our pre-op consultation with them. After that we had the evening to ourselves, so we went and checked into our hotel…

…and then went out to dinner at Block 16, a hipster sandwich shop downtown, which all of us enjoyed! We tried to get FangFang a good last meal with all her teeth 🙂

She went to bed pretty well, and she actually did better than I thought she might with not being able to eat or drink after 8:00 AM. I woke her up around 7:45 to give her a clear liquid breakfast (jello and apple juice were her choices), and then I let her play with an iPad as a distraction while Catherine and I took turns getting some breakfast. We had a 10:00 AM check-in time at the hospital, so the morning was actually reasonably leisurely, and it wasn’t long before we were playing in the hospital playroom with brief breaks to consult with our nurse, a nurse practitioner, the dentists, and the anesthesiologist.

She was pretty happy right up until surgery. I actually declined Versed, and everyone seemed to think that was a good choice, because she seemed so comfortable and happy interacting with everyone, but as soon as she got about 10 feet down the hall from me, she started wailing, and they said I could come back with her. Her oral surgery was taking place in the procedure suite, which apparently has a lower standard of sterility than the OR, so I was allowed to walk into the room with her. I really wish all hospitals would do that for all procedures, whether they’re in the OR or not. FangFang is going to need a number of surgical interventions over her lifetime, and I’d prefer that, as much as possible, she see hospitals as places that help her, as opposed to the locations of traumatic experiences. Nurses seemed very concerned that it might be overwhelming to me to see her go under sedation in preparation for the procedure or have her throat suctioned afterwards, and they didn’t want me to feel uncomfortable. I assured them that I’d witnessed my husband experience cardiac arrest, so nothing they were going to do that day was going to make me uncomfortable, and if I needed to get out of the way, I’d do it. And most importantly, this is about FangFang, not me – if she’s more comfortable with me there, that trumps all else. They let me hold her and sing to her while she went to sleep, and I was so glad.

Catherine and I grabbed some lunch at the hospital cafeteria and then headed back up to our room to wait for FangFang. The dentists came and talked with us and said they’d pulled 5 teeth – the offending back molar that had the deep cavity giving her so much pain and her 4 front teeth, all of which had significant cavities. Because they’d pulled so many, they hadn’t needed to cap any teeth, but the crowding in her mouth will continue to make brushing and flossing a huge priority. They do not believe she has dentinogenesis imperfecta but that it’s more likely that we’re playing catch-up from her years in an orphanage, plus the crowding of her mouth, which is good news, because it means there’s some chance she won’t continue to have such serious dental issues.

It wasn’t long before I was allowed to go back to FangFang in recovery, and I walked in just as she was starting to open her eyes. She was in pain and angry. We got her Tylenol right away, and she wanted to leave that area, so we got to go back to our room right away, but she was still mad. We gave the Tylenol a bit of time to work, but it didn’t seem to be taking the edge off at all, so it wasn’t too long before we requested something stronger, and once she had a dose of Oxycodone, she started to calm. She cried for the mouth pain and cried in hunger and cried from her sore throat every time she had to swallow (she’d been intubated for the procedure). We started gradually introducing some clear liquids – apple juice and water and then jello, and she handled that well (no projectile vomiting!), and just before 4:00 they said we could go!

We weren’t sure how FangFang would do on the car ride home, and I was so thankful to have another adult with me who could help monitor her while we drove. She was pretty content watching Frozen and Daniel Tiger, though, and slept just a bit. She was even happy enough to try on goofy hats at a truck stop where we stopped to give her more pain meds and get gas!

We made it back home just before 11:00 last night, and she was very happy to be back, as was I!

Honestly, the trip itself went pretty well. That was really largely due to Catherine’s presence with us. I so enjoyed getting to chat with her on our drives – it was so much more fun than just driving by myself – and as a mom to four, it almost never happens that I get 10+ hours to hang out with a friend! And she was so helpful in assisting me with everything FangFang needed, getting juice or jello or washcloths to wipe up blood, and entertaining her while I talked with the doctors and dentists. I’m so, so thankful she came – such a blessing and encouragement.

And I’m so glad to be done with the procedure. FangFang was in a fair amount of pain yesterday but seems to be feeling a million times better today. She’s really been in pain for almost a month, and I’m so glad we were able to get this dental work done quickly and be done with it.

Re-entry is always rough, at least for me. I’m so excited to see everyone, but I’m also worn out. I really just want to have some quiet, alone time to read a book and relax. But there’s unpacking to do, and I’m behind on my work week since I was gone for 2 days, and kids need to be fed and cared for, and things at the house are just a little out of sorts any time I return from being gone. It always feels overwhelming to me, and I get snippy. There’s nothing that reveals your selfishness like parenting – and I think that’s doubly true when you add in any special needs. I do feel stretched, and I do feel tired, and I do feel overwhelmed at times, but that’s not a license to be unkind to anyone else, and I definitely fail at living that out.

I’ve tried to spend some time helping everyone settle back in. FangFang and I snuggled and read a book this morning, and a bit later Madeleine CaiQun and I got some one-on-one time reading on the couch together. Miranda and I had some chats, and Atticus came and snuggled with me for a while.

Matt has the kiddos out at a park right now, and I’m hoping to use this time well, doing some catch-up on all the tasks I need to tackle, but also to recharge and be prepared to love well when the rest of the family returns. I spent some time reading my Bible and praying and journaling, which has helped to settle my heart. I’m hoping that when everyone comes home, we can have an evening of enjoying being together, both in cleaning up the house some but also in just spending time together. These people have my heart, and I want to live that out, day by day, moment by moment.

Another Trip to Omaha, Another Surgery

Early tomorrow morning, I’ll load a few more items into our van and take off on a road trip with my newest kiddo. This trip wasn’t entirely anticipated, but it’s necessary.

We knew before we even submitted our Letter of Intent requesting to adopt FangFang that it was likely that she’d have dental issues – dentinogenesis imperfecta is a significant dental condition often associated with osteogenesis imperfecta. Additionally, dental care is often not a priority or even feasible in orphanages. And from day one with FangFang, I’ve known with certainty that she was going to be spending a lot of time with a dentist.

We were working through the process of figuring out exactly what would need to happen and making a plan with our local dentist when the situation became more urgent. FangFang woke up one morning with severe tooth pain, in agony if food even touched one particular tooth that has obvious decay. We got her started on antibiotics and some pain meds right away, but still, she was in a fair amount of pain, and then her cheek started to look swollen. We had to switch her to a stronger antibiotic, and all through that time, we were working with our dentist’s office to determine the best course of action for actually dealing with the offending tooth, as well as some other teeth that are obviously problematic. Our local dentist’s office has been great – in the span of that first painful, sleepless-for-everyone week, I spoke with our dentist’s assistant 5 times and our dentist himself 3 times, including twice on his personal cell phone on a Saturday morning.

One of the things I actually most appreciate about people in general – but especially medical professionals – is a willingness to admit when they don’t know or are not going to be the best person to help you. And our local dentist feels like he’s probably not the best dentist to perform the extensive dental work that FangFang needs during this surgery. That’s a bummer, but we definitely want her to be getting the best care possible, and this is significant oral surgery with some potential complications. The term being thrown around is “total mouth reconstruction.” Add to that the fact that she has OI and that the treatments she receives for OI can change how bone heals, and her local dentist thinks it’s best if a dentist who has more experience doing oral surgery for kids who have OI performs this surgery.

We feel so bad for FangFang – she’s been experiencing tooth pain at varying levels for several weeks now and is about to undergo another surgery. And we’re bummed that it has to happen out of town and right now, right at the beginning of the semester, when Matt can’t take off, and we’re kind of cobbling together support to make the trip and the surgery possible, but this is what we need to do, so we’re doing all we can to make it happen.

Matt will stay here with Miranda, Madeleine CaiQun, and Atticus while FangFang and I make the trip to Omaha. I  had been dreading this trip, both because it would be yet another surgical intervention for my child and because I’d need to do it alone. I love road trips with Matt or with friends, but I really dislike them when I don’t have other adults with me and have to do all the driving and keep myself entertained and awake the whole time. That feeling is intensified when contemplating a road trip with myself as the sole adult with a rear-facing toddler, who, for the drive home, will be just recently post-op. I’d stocked up on road trip snacks, and I’d been praying that God would sustain me for the trip, that He’d help me make it through those drives safely.

But because we serve a God who sometimes comes through for us in ways that are beyond what we are expecting or even hoping for, I now have a friend who is going to travel with us! Last night was our church missional community group meeting, and my friend Catherine – whom FangFang loves – happened to mention that this is her “off” week in her 7-days-on-7-days-off work schedule. It occurred to me once we got home that maybe, just maybe, she’d want to join me for a road trip to Omaha, so I sent her a message, and she said the idea had actually occurred to her, too, and she’d love to come along us! That eases so many of my worries about the trip. I could do it myself, but it’ll be so much easier and so much more enjoyable to have a friend along!

I still expect these next few days are going to be pretty intense, but we’re doing what needs to happen to get FangFang all of the care that she needs, and that’s obviously important. Would you pray for all of us during this time? Here are some specific ways in which you could pray –

  • Please pray for FangFang and Catherine and me as we travel. Please pray for our safety as we drive and for us to make good time, as we’re shooting for an on-time arrival for our afternoon pre-op appointment tomorrow.
  • Please pray for Matt and our kiddos who are staying here. It’s a departure from routine and a lot of time without their mama for my kiddos who are used to being with me. I’ll miss them a ton, and I know they’ll miss FangFang and me, too. A friend is helping out in caring for them some, but it will still be a lot of solo parenting for Matt, who is also getting back into the groove of teaching.
  • Please pray that FangFang does alright with the restrictions on her food and drink intake prior to surgery. For kiddos who have experienced food insecurity, this is so tough.
  • Please pray for our sleep on Thursday night. Friday is going to be a big day, and it would be ideal for us to be well-rested heading into it.
  • Please pray that all goes well with the surgery itself – that the dentist makes wise decisions about exactly what needs to happen (with 3-year-olds, for whom it’s nearly impossible to get high quality x-rays until they’re sedated, some of the final decisions don’t happen until surgery), that everything goes smoothly, and that the work they do will ultimately give FangFang relief and protect her remaining baby teeth for as long as they need to last.
  • Please pray for her post-op recovery. After her last surgery, she was pretty sad and wanted a lot of food and drink, which ultimately led to several instances of projectile vomiting, but then rest. Pray for me to have wisdom about what food and drink to give her and how to care for her, and pray for everyone to be gentle and supportive in caring for her after surgery and to do what she needs. Please pray also for wisdom for everyone in determining when she’ll be discharged. This should be an outpatient procedure, but discharge timing all depends on her post-op recovery.
  • Please pray for pain management. The team I’ve been talking with has said that kiddos are actually often in less pain after a surgery like this, which has been precipitated by tooth pain, than what they’d been living with prior to surgical intervention. I’m hoping that’s the case, but we don’t really know how everything will go for FangFang, and I want her to be comfortable as she recovers.
  • Please pray for our travels back home. I’m really hoping for less vomiting and just a straight transition to the groggy restfulness after surgery. If all goes as planned, we’ll probably be discharged around 4:00 pm, and from there, we can just drive home, but we’ll still have a reasonably long drive ahead of us, especially with a kiddo who just came out of anesthesia and may be in some pain.

Thank you, friends. I’ll keep you posted as I’m able!

Our First Major Fracture

We’ve known all along that FangFang’s osteogenesis imperfecta would mean that she’d be highly susceptible to bone fractures, and we were a bit relieved when, in January, we experienced what we believe was her first fracture since coming home. We made it through that and breathed a sigh of relief! It was relatively mild, though – we weren’t even sure anything was going on until the morning after it happened. And honestly, it made this OI mama gig seem pretty easy!

But this week we had our first real, major fracture. FangFang’s newest skill, of which she is immensely proud, is that she can go up and down the stairs by herself. She sits on her bottom and scoots herself up or down one stair at a time, and while I wouldn’t let her do it totally unsupervised, she’s been pretty consistently safe.

We invited some friends to come over for a low-key hangout to celebrate the 4th of July, and while they were here, FangFang was going from me (upstairs) to Matt (downstairs in the studio), and as she was scooting from one step to the next, I heard a crack, and then she started crying very loudly. FangFang has a flair for the dramatic, so it wasn’t as much the intensity of her cry that alerted me to the fact that this was something serious, but rather its persistence and her self-splinting of her leg (positioning her other foot underneath it) to protect it. I scooped her up right away and carried her upstairs and offered a bit of comfort and had Matt go get our break box from upstairs.

We gave her the heavy duty pain meds that we keep on hand for these exact situations and splinted her leg. Nothing looked displaced, and the 4th of July is probably one of the dates on which I would least like to go to the Emergency Room – I am pretty uninterested in spending the evening competing for medical care with people who have experienced fireworks accidents, and I’d rather we not be the guinea pig for the new residents. We opted to medicate and splint at home, knowing we’d call the orthopedic surgeon in the morning to try to get some x-rays to make sure additional treatment wasn’t warranted. There was quite a bit of crying, but we got her splinted and calmed down and set up watching tv.

Then it wasn’t long before, thanks to the intense meds, she slept for a couple hours before waking up in pain again. I felt so bad for her – at that point, I really could only give her Tylenol and Ibuprofen, nothing more yet, and she was clearly in a lot of pain. I texted and then even called another OI mama and asked her what I should do. She said this really just is how it goes with this sort of fracture, that there wouldn’t be much more they could do at the ER, and we needed to stay on top of pain meds and just do all we could to keep her distracted. She was a lot happier once we gave her an iPad she could control herself (she likes to switch videos every 7 seconds or so!) instead of just putting one show on the tv. We were so thankful that something helped!

Thanks to her nap, she stayed up fairly late that night, and thanks to the intense pain meds, she was a little loopy, chatting with Matt and me about all sorts of topics!

We brought down a travel cot for her, so she’d be a little more comfortable without us having to carry her all the way up the stairs and jostle her getting her into and out of her crib, and I slept on the living room couch next to her, so I could be nearby if she needed me and could also stay on top of pain meds during the night.

She spent most of the next morning with my iPad. With a good pain med schedule, no movement, and an iPad, she was reasonably comfortable, but without any of those things, she was in quite a bit of pain. That meant that going to the ortho for x-rays that morning was pretty agonizing for her. I put her in her stroller once we arrived to minimize the amount of moving of her leg I’d need to be doing, but we still needed to move her to get x-rays and then to re-splint.

The x-rays confirmed what I’d suspected, a significant tibia fracture. They also showed what I’d hoped for, though, that there was no displacement and no treatment needed beyond splinting.

The nurse practitioner started removing the splint I’d put on before I realized what was happening – I haven’t quite mastered the OI mom skill of (1) comforting your hurting, crying child while (2) talking to medical professionals and (3) monitoring all medical professionals in the room to make sure they’re not doing anything you don’t want them to do. Truthfully, it wasn’t the greatest splint, and I knew it wasn’t great, but we’d been trying to get it on and stable while FangFang was in a huge amount of pain, so I was satisfied that it met the basic criterion of immobilizing the joints above and below, and I figured I’d re-splint with a better one in a few days once the pain went down. But once it was already off, I agreed that we might as well put on a better one. I was nervous about not doing it totally myself – we’ve heard some horror stories about medical professionals not understanding how to work with kids with OI bone – but I was actually very impressed with the guy who does the casting and splinting at our orthopedic surgeon’s office. He and I worked together to put on a new splint with minimal trauma to FangFang, though she still hated it, but now we’re all set for a few weeks.

For FangFang, Wednesday was really a day comprised almost entirely of lying on her little cot and watching videos on my iPad.

That prompted some jealousy, and some older siblings may have confessed to stomping their feet on the floor as hard as possible in attempts to break their own legs and get extra tv time. Technology envy is alive and well at our house 🙂

Thankfully – for everyone’s sake! – FangFang was feeling much better by yesterday. She got off her cot and started scooting herself around again, she played with siblings, we were able to wean down to just Tylenol and Ibuprofen, and she was so much more herself.

I’m still pretty bummed about the fracture – sad for FangFang that it had to happen at all and sad about the timing of it. Though it was nice at times to have some extra adults around, there are many ways in which it’s not ideal to fracture your leg in the midst of a party at your house! And my big girls were bummed to miss out on going to fireworks on the 4th. It’s also the beginning of July – basically the middle of summer around here – and I so love getting to take everyone to the pool, and while technically I could let her get her splint wet and then just re-splint with a new one afterwards, we won’t want to take this one off for at least a week and a half, so she – and we – will miss out on some pool time. But ultimately I’m thankful she’s doing so well now, and I’m thankful it wasn’t any worse than it is!